This blog features the story of one of our valued participants, who has given their full consent to share their experience. At Krystal Community Care, it is the lives we touch that truly define who we are. We hope you enjoy reading…
I find myself in this position due to a significant disability, and a family breakdown. Throughout my life, I’ve had many experiences, including frequent relocations and attending different schools. I have a deep passion for travel and am naturally compassionate. Recently, I’ve felt the need for some time to myself, but during this period, I’ve also rediscovered my love for the arts, including martial arts, creative graffiti, and dancing rebuilding and strengthening relationships.
In my experience, the NDIS has been a game-changer. We are fortunate to have the NDIA. I’ve realised there is a lot to learn about the rules, regulations, and processes. The system can be complex and constantly evolving, which can lead to some confusion at times. However, on the positive side, my NDIS funding is essential in helping me with daily activities, and I’m grateful for the support it provides, but I do need furthermore supports.
As a participant supported by a reputable registered provider, I am fortunate that my goals and needs are prioritised. My provider focuses on ensuring my independence, goals, and wellbeing, which has made a significant difference in my life. What are your goals while receiving support from a NDIS registered provider? Like many, I have several goals. These include becoming more physically, mentally, emotionally, and spiritually stable. The last decade has been challenging, but I’ve gained invaluable insights along the way. I’ve learned a great deal from the people around me, my support workers, and by trusting myself. I’ve come to realise that I have control over my plan, the choices I make, and that I can lead a safe, healthy lifestyle. Ultimately, I am responsible for my own journey.
My struggles are real. Physical, mental and spiritual. It is hard, but I am one of the lucky ones receiving NDIS support and have a pretty good service provider that sees and hears me.
I love seeing and spending time with my family and friends, attend church, but isolation is a big one. I spend many nights not sleeping and I have levels of anxiety sometimes it gets to me, and I find it hard to get back to myself. I like music, dancing and being out in the open and I like being near the water (sea) helps me.
I am knowledgeable with community connections, but I do need my supports in place to help we align some of the services. Advocacy is must, I try to advocate for myself as much as I can, and I get frustrated very quickly. I am grateful for my supports.
KCC is amazing, because they are very professional with their approach. From support workers to management are very warm heartly and full of empathy, compassion individuals who are there to actively listen and are just there when needed.
Absolutely, 100%. They are professional, genuine, and highly experienced with the system overall. Above all, they are an ethically great provider.
To the young ones facing daily struggles with a disability: Don’t hesitate to ask for support. While the NDIS paperwork can be challenging, help is available. I have an amazing Support Coordinator (SC), and Krystal Community Care has many skilled SCs to assist you.
For every Australian living with a disability, I encourage you to reach out for support. It’s worth it, and there is no shame in seeking help. To support providers and workers: Thank you for your services. However, please remember that we need professionals who are not only skilled but also fun, trustworthy, and genuinely committed to working with us — just like my wonderful supports at Krystal Community Care.
